Enrolling in ACTTM opens up a new world of support to you. You’ll get to know our ACT team members, who are dedicated to supporting you.
From your first interaction with an ACT Care Support Specialist through an ongoing relationship with your dedicated ACT Care Coordinator and learning sessions with ACT Care Educators, you’ll receive resources and support tailored to your needs.
ACT Care Support Specialists
ACT Care Coordinators
ACT Care Educators
ACT Care Support Specialists
Before you are enrolled in ACT, Care Support Specialists will:
ACT Care Coordinators
Once you are enrolled in ACT, you will be paired with a dedicated Care Coordinator who is:
ACT Care Educators
Our Care Educators are registered nurses who can help you*:
*Your doctor is always your best source for treatment information.
The Amylyx Care Team is relentless in helping to break down barriers for people living with ALS and their loved ones, partnering to provide simple solutions so they can focus on what matters most.
Through your ACT Care Coordinator, you will be connected with the following support and the appropriate ACT team members who help in each of these areas.
In addition to enrolling you into the ACT Support Program, we can:
Our ACT Care Educators are registered nurses who can provide additional education about ALS and your treatment.*
*Your doctor is always your best source for treatment information.
We can connect you with other groups that support people living with ALS, including local or regional community advocacy groups in your area.
We partner with specialty pharmacies to help:
To learn more about specialty pharmacies, download the ACT Specialty Pharmacies Flashcard on the Resources page of this website.
We are here to listen to you as an individual and can customize our communication approach based on your personal preferences. We strive to:
If you are commercially insured (meaning you have private insurance, not Medicare, Medicaid, or any other state or federally funded insurance program), you may be eligible for our co-pay assistance program. Your ACT Care Coordinator can help you see if you qualify for a $0 co-pay.
We can assess your eligibility to receive up to 2 months of RELYVRIO while you’re waiting for your insurance company to approve your treatment. This program is available on a case-by-case basis if you’ve been prescribed RELYVRIO for the first time and are commercially insured.
If you do not have insurance or do not have insurance that covers your treatment, the ACT Patient Assistance Program may be able to assist you. Your ACT Care Coordinator can work with you to determine eligibility.
*Out-of-pocket costs related to medication, appointments, evaluations, testing, or other related services are not covered by the RELYVRIO Co-Pay Program. The RELYVRIO Co-Pay Program is not available for prescriptions purchased under Medicare, Medicaid, TRICARE, or other federal- and state-funded programs. Amylyx reserves the right to amend or terminate the Program at any time without notice. Co-pay amounts after applying co-pay assistance may depend on the individual's insurance plan and may vary. The RELYVRIO Co-Pay Program is intended to help individuals afford RELYVRIO.
The ACT team may include additional members who are not pictured here.
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When you and your doctor decide that RELYVRIO is right for you, it is important to work together to enroll in ACT. Together, you can fill out the RELYVRIO Enrollment Form, which will give you access to support from the ACT team and serves as your prescription for RELYVRIO.
ACT team members are available to assist you Monday through Friday, 8 AM to 8 PM ET
Before you receive RELYVRIO, tell your doctor about all of your medical conditions, including if you:
Tell your doctor about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements and any taurursodiol products, such as tauroursodeoxycholic acid (TUDCA).
RELYVRIO may affect the way other medicines work, and other medicines may affect how RELYVRIO works.
What are the possible side effects of RELYVRIO?
RELYVRIO may cause serious side effects, including:
The most common side effects of RELYVRIO include diarrhea, abdominal pain, nausea, and upper respiratory tract infection.
Tell your doctor if you have any side effect that bothers you or that does not go away. These are not all the possible side effects of RELYVRIO. Call your doctor for medical advice about side effects.
You may report side effects to FDA at 1-800-FDA-1088.
RELYVRIO is indicated for the treatment of amyotrophic lateral sclerosis (ALS) in adults.
For more information about RELYVRIO, please see the full Prescribing Information and Medication Guide.
We can provide you with educational resources about the ACT Support Program and the Enrollment Form to help get your patients started on RELYVRIO.
Let them know they will receive personalized support as they start and continue on RELYVRIO.
Before you receive RELYVRIO, tell your doctor about all of your medical conditions, including if you:
Tell your doctor about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements and any taurursodiol products, such as tauroursodeoxycholic acid (TUDCA).
RELYVRIO may affect the way other medicines work, and other medicines may affect how RELYVRIO works.
What are the possible side effects of RELYVRIO?
RELYVRIO may cause serious side effects, including:
The most common side effects of RELYVRIO include diarrhea, abdominal pain, nausea, and upper respiratory tract infection.
Tell your doctor if you have any side effect that bothers you or that does not go away. These are not all the possible side effects of RELYVRIO. Call your doctor for medical advice about side effects.
You may report side effects to FDA at 1-800-FDA-1088.
RELYVRIO is indicated for the treatment of amyotrophic lateral sclerosis (ALS) in adults.
For more information about RELYVRIO, please see the full Prescribing Information and Medication Guide.
Reference: 1. RELYVRIO. Package insert. Amylyx Pharmaceuticals Inc; 2022.
